The Swan Nest is delighted to work closely with Rare Disorder NZ. Nearly 50% of people living with rare disorders are Children. Working closely with Rare Disorders NZ makes sense for The Swan Nest and our social media pages will be updated regularly.

There are more than 7,000 different types of rare disorders, with more being discovered each day.

There are an estimated 300 million people living with a rare disorder worldwide.

72% of rare diseases are genetic in origin and thus are present throughout a person's life even if the symptoms do not immediately appear.

Approximately 50% of the people affected by rare diseases are children.

95% of rare diseases have no approved drug treatments.

Approximately 50% of rare diseases do not have a disease specific foundation supporting or researching their rare disease.

Source: Rare Diseases International